Bladder and Bowel Service (Children)

Bedwetting

• Understanding bedwetting in children with Downs Syndrome and other learning disabilities
• Bedwetting
• Promoting healthy bladders

Toilet training

• Information for parents around toilet training children with Autism Spectrum Disorder
• Information for professionals and carers around toilet training
• Information sheet around Toilet training children with additional needs
• Understanding getting ready for potty training
• Changing places app
• Radar Key

ERIC support

• The Right To Go: Helping schools manage continence problems
• The Right To Go: A detailed guide to helping early years settings and schools manage continence
• ERIC’s Guide to Potty Training
• Thinking about wee and poo now you’ve reached the age of 2
• Thinking about wee and poo now you’re on your way to school
• Children who will only poo in a nappy
• ERIC’s Guide to Childrens Bowel Problems
• ERIC’s Guide to Night Time Wetting
• Bedwetting Alarms – Your questions answered 
• ERIC’s Guide for Children with Additional Needs 
• A Parent’s Guide to Disimpaction

Support groups

• Child Continence Support Group (CCSG) – Facebook
• Movicol Mummies (Facebook)
• Encopresis Support UK – Facebook page
• Daytime Wetting in Children and Teens  Facebook page
• LIBBI UK – Leaks, incontinence, bladder and bowel issues (Facebook)
• Encopresis Support Worldwide (Facebook)
• Children’s Continence Support (Facebook)
• Mitrofanoff Support Group – Facebook page

Bowel and bladder health information

• Stop Bedwetting – www.stopbedwetting.org
  Offers support and information about childhood bedwetting to patients and health care professionals.
• World Bedwetting Day – www.worldbedwettingday.com
  International campaign to raise awareness about this common condition and encourage families to get help.
• Bladder and Bowel UK (formerly PromoCon) – www.bladderandboweluk.co.uk
  Part of the organisation Disabled Living, provides advice and support to help manage any kind of incontinence, bladder or bowel-related issue.
• Bladder and Bowel Community – www.bladderandbowel.org
  Support, information and guidance for people with bladder and bowel control problems.
• Bladder Health UK – http://bladderhealthuk.org
  Provides support to people suffering from all forms of cystitis, overactive bladder and continence issues.
• Mitrofanoff Support – www.mitrofanoffsupport.co.uk
  Provides emotional support, reassurance, information and networking opportunities for those who have had the Mitrofanoff procedure.
• CHAMPS Appeal – https://www.facebook.com/champsappeal/
  Supports children living with Hirschsprung’s Disease and their families during diagnosis and surgery. Also provide post-operative support and activity days.
• Colostomy Association – www.colostomyassociation.org.uk
  The Junior Ostomy Support Helpline (JOSH) for parents and carers of children who have had bladder or bowel surgery resulting in a stoma or bladder augmentation.
• The UK Paruresis Trust –  https://www.ukpt.org.uk/
  Supporting those struggling with Shy Bladder Syndrome

National Institute for Health and Care Excellence (NICE) guidelines

• Bedwetting in under 19s – www.nice.org.uk/guidance/CG111
  Guidance on the assessment, care and treatment of children and young people up to the age of 19 with bedwetting.
• Constipation in children and young people: diagnosis and management – www.nice.org.uk/guidance/cg99
  Guidance to support the early identification, positive diagnosis and timely, effective management of constipation in children and young people.
• Urinary tract infection in under 16s: diagnosis and management – www.nice.org.uk/guidance/cg54
  Guidance on the care and treatment of babies, children and young people under 16 with a urinary tract infection (UTI).

eLearning for health professionals

• Coloplast online training portal – https://coloplast.e3learning.co.uk
  Management of Bladder & Bowel – Paediatrics course  (you will need to register an account to access the course).

Support for children and teenagers

• Childline – www.childline.org.uk
  Private and confidential service for children and teenagers up to the age of 19 to help with any issue or problem they may be experiencing.
• The Mix – www.themix.org.uk
  Provides information and emotional support to 13-25 year-olds and helps them to open up about difficult issues.
• Great Ormond Street Hospital – www.gosh.nhs.uk/children
  Offers information for children on their health condition and treatment and what to expect when they go to hospital.
• Go Against The Flow – www.goagainsttheflow.org.au
  Australian health awareness initiative designed to empower teenage girls to tackle bladder incontinence and develop their pelvic floor muscles.
• Incontinence in Confidence – www.inconfidence.org.au
  The Continence Foundation of Australia’s support website for teenagers.

Help with bullying

• Bullying UK – www.bullying.co.uk
  Part of the organisation Family Lives, provides general advice on all aspects of bullying for children, young people, parents and schools.
• Kidscape – www.kidscape.org.uk
  Equips young people, parents and professionals with the skills to tackle bullying and safeguarding issues across the UK.

Support for parents and carers

• Patient – www.patient.co.uk
  Independent health platform providing information for both patients and health professionals.
• Medicines for Children – www.medicinesforchildren.org.uk
  ‘Practical and reliable advice about giving medicine to your child’ – includes leaflets written by paediatricians and pharmacists.
• The Breakaway Foundation – www.breakawayfoundation.org.uk
  UK-wide charity supporting children and young people with bowel and/or bladder diversions and dysfunction.
• Home Start – www.home-start.org.uk
  UK family support charity. Home Start volunteers help families with young children to deal with whatever challenges they face.
• Family Lives – www.familylives.org.uk
  National support charity ‘helping families with any problem or challenge they face’.
• Parenting Across Scotland – www.parentingacrossscotland.org
  Partnership of charities offering support to children and families in Scotland.
• National Autistic Society – www.autism.org.uk
  National charity for autistic people (including those with Asperger’s syndrome) and their families.
• Action for Children – www.actionforchildren.org.uk
  Work to make sure every child and young person ‘has the love, support and opportunity they need to reach their potential’.
• Scope – www.scope.org.uk
  Provide support, information and advice to disabled people and their families.
• Living Made Easy for Children – https://www.livingmadeeasy.org.uk/children
  Impartial advice and information about daily living equipment and other aspects of independent living for children, set up by the Disabled Living Foundation.
• Family Fund – www.familyfund.org.uk
  UK charity providing grants for families raising disabled or seriously ill children and young people.
• Turn2Us – www.turn2us.org.uk
  National charity helping people in financial hardship to gain access to welfare benefits, charitable grants and other financial support.
• The Sleep Charity – www.thesleepcharity.org.uk
  Providing advice and support to empower the nation to sleep better
• Contact – www.cafamily.org.uk
  National charity for families of disabled children.
• Skiggle – https://www.skiggle.co.uk/
  Charity with an online marketplace for rehoming disability care supplies including continence products.